need some prayers or thoughts for my little girl - JKowners.com : Jeep Wrangler JK Forum
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post #1 of 289 Old 06-03-2011, 06:40 PM Thread Starter
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need some prayers or thoughts for my little girl

had some really tough news today. my wife took my 6 day old baby girl in to the Dr's for a normal weight check and her screening that they did at the hospital came back for cystic fibrosis. we are absolutely blindsided and shocked. There's no history in our families.

our Pediatrician did a horrible job explaining it to my wife. at least her mother was with her. he woudlnt give any straight answers. my neighbor is a general practicioner and came over and read the results with us and she has both recessive genes. so she does have it, but we're getting the sweat test on wednesday to confirm.

Lots of tears today. it's hard to think that my beautiful little girl has such a horrible disease. My wife and i are both bound and determined to make her life the exact same as it would even if she didn't have it.






where i need you guys is if you want, pray for her daddy to be strong for her and her mommy. i'm realistic, i know there's no cure, but a huge responsibility has been put on my shoulders. I have to be the rock of this family and need all the help i can get.

anyway, I know i can be opinionated as hell but thanks for your support.

31 jeeps in... still have issues
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post #2 of 289 Old 06-03-2011, 06:43 PM
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Dude. I'm so sorry to hear this. Thoughts and prayers for you and your family. I can't imagine the shock.


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post #3 of 289 Old 06-03-2011, 07:04 PM
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I know how you feel. We went through a similar thing when my daughter was born. It's probably one of the worst feelings I have had. Our prayers will be with you and your family. Your daugher looks very cute. Congrats.

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post #4 of 289 Old 06-03-2011, 07:10 PM
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Dammit. You, your wife, and your beautiful little girl are in my thoughts. Prayers sent.
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post #5 of 289 Old 06-03-2011, 07:12 PM
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Really sorry to hear that. I'll keep you and your family in my prayers.

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post #6 of 289 Old 06-03-2011, 07:14 PM
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Prayers sent. You will be stronger than you ever thought possible.

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post #7 of 289 Old 06-03-2011, 07:18 PM
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You and your family will be in our thoughts and prayers. I'm sure you will find the inner strength to be the rock for your family.


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post #8 of 289 Old 06-03-2011, 07:20 PM
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So sorry to hear this! No matter how short or long you may have, you have a beautiful little blessing there in a sweet tiny package. Enjoy every single minute you have. Many tough times are ahead but you will find the strength. As a father of a sick young boy with cancer of the sinuses, I have an idea of what you are going through. Hit me up anytime you want.
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post #9 of 289 Old 06-03-2011, 07:21 PM
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I praying with you Bro! Both if my boys have a rare form of CF. We just did the sweat test on my 4 yr old and waiting on the results. Its N470V. Very rare.


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post #10 of 289 Old 06-03-2011, 07:22 PM Thread Starter
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thanks guys. I never thought i could love someone so much... If you know me you know i'm not a mushy guy. But i literally felt like my chest was ripped open. i've never felt anything like it.

I need to channel what i'm feeling into determination...

31 jeeps in... still have issues
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post #11 of 289 Old 06-03-2011, 07:29 PM
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post #12 of 289 Old 06-03-2011, 07:30 PM
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I've seen you around forums for a while now but I have given you and your family and your beautiful daughter all my prayers.

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post #13 of 289 Old 06-03-2011, 07:34 PM
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thanks guys. I never thought i could love someone so much... If you know me you know i'm not a mushy guy. But i literally felt like my chest was ripped open. i've never felt anything like it.

I need to channel what i'm feeling into determination...
Your daughter is beautiful. I am so sorry for what your family is going through.
You are stronger than you know. There is nothing more powerful than the bond between a Dad and his daughter. You are on the right path. Channel what you are feeling into unfailing determination to make her life as wonderful as possible. You are a good Dad.

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post #14 of 289 Old 06-03-2011, 07:41 PM
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Prayers for your family and hoping for the best. Your daughter is beautiful. There is nothing that positive attitudes can overcome.

If there is anything you need, please feel free to ask. I have 1 and 4 year old girls, so I got some stuff!

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post #15 of 289 Old 06-03-2011, 07:52 PM
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Quote:
My wife and i are both bound and determined to make her life the exact same as it would even if she didn't have it.
With this attitude, you will be just fine. I will be sure you are on our prayer list but you will have the strength you need and then some. Hang in there and be sure to know that we are all here for you if you need to talk, vent, or whatever. God bless you and your sweet little daughter.

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post #16 of 289 Old 06-03-2011, 07:58 PM
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My wife and I will continue to pray for comfort and health for your daughter and family. We have a six-week old and went through some trying times in the beginning too. It seemed overwhelming at the time but got better. She is absolutely adorable! Take care of your girls.
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post #17 of 289 Old 06-03-2011, 08:01 PM
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So sorry to hear this news. As Charlie said, you've got the right attitude. Stay strong man. Positive thoughts for the three of you.
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post #18 of 289 Old 06-03-2011, 08:04 PM
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Very sorry to hear this, I hate it when little ones get this sick. Keep your heads up and stay strong


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post #19 of 289 Old 06-03-2011, 08:08 PM
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Sorry man. You will find inner strength you never knew you had. My prayers are with you and your family.

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post #20 of 289 Old 06-03-2011, 08:09 PM
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post #21 of 289 Old 06-03-2011, 08:11 PM
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Very sorry to hear what you are going through. My prayers go to you and your family.

You will find the strength. You just remember your beautiful wife and daughter need you. Be strong brother.

Prayers sent and will continue to pray.

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post #22 of 289 Old 06-03-2011, 08:12 PM
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I never know what to say in these situations, other than I'll be thinking about and praying for your family.

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post #23 of 289 Old 06-03-2011, 08:13 PM
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Best wishes, my thoughts are with you and yours.

Btw, that first pic is really cute!

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post #24 of 289 Old 06-03-2011, 08:21 PM
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Prayers.

Stay strong.
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post #25 of 289 Old 06-03-2011, 08:26 PM
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Ive been through some serious shit with my son when he was born weighing 2.5 lbs. You are about to find inner strength you never knew existed.

The Butters family has your family in their prayers. Take care.



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