You know i only post about 1 fundraiser a year. And you OG JKO guys remember my kiddo's. For you guys that are newer. Both of my daughters have cystic fibrosis. Which is a terminal disease that basically destroys the lungs, pancreas, and in Penelope's case her liver.
They're doing pretty well right now. Amelia's on a new drug (that was 100% privately funded by donations through the CFF... Donations from you guys!. Those of you that gave when i first started doing this 7 years ago, you literally helped pay for this med Amelia is on). PJ's doing pretty well. Liver issues but otherwise seems ok. She's so tough though it's sometimes hard to tell.
This year they both got to meet Colton Underwood (the bachelor) and he gave them Afflovests! which has been an absolute life changer for both of them.
Anyway, if you give to charities, I am asking you to consider giving to one that's literally keeping my kids alive. Even a few bucks gives you part ownership of these new treatments. And like i said, those of you that gave 7 years ago, literally helped fund a medication that Amelia is taking (and PJ will be eventually)!
Pittsburgh CF Cycle for Life 2019: Ryan Dunbar - Cystic Fibrosis Foundation
the girls at Bantam with their new Afflo Vests:
At Rocks for Roses. The young lady there in the 2nd pic is Katelyn. She also has CF and now runs what was the Amelia's Angels jeep ride. I gave it to her with PJ was born. The girls got to meet her from a distance (CFers can't be near each other. Ever seen 5 feet apart? that's about CF)
our cycle for life team last year was the number 1 fundraising team also! and we rode in a hurricane... so you guys got your $'s worth out of my suffering haha
Anyway, thanks for your continued support. And thank you for giving my girls more tomorrows.